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  3. Aaron Abend
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Aaron Abend

Executive Director
Autoimmune Registry Inc
Country or state 
United States
Available to 
Global
City 
New York City
Fee 
Ask for pricing
Languages 
English
Volunteer
Yes

Personal Details

Bio

Aaron Abend is a software entrepreneur whose company helped academic medical centers apply clinical data from Electronic Health Records to medical research. His company, Recombinant Data, was acquired in 2012.

In 2013, Mr. Abend became interested in autoimmune disease after being approached by a biotech with a new treatment for lupus. He declined that opportunity, but shortly after, his mother was diagnosed with Sjogren’s Syndrome (after living 10 years with classic symptoms). He discovered the poor state of knowledge about autoimmune diseases and decided to build a national registry modeled on the National Cancer Registry.

He founded Autoimmune Registry Inc (ARI) in 2016 as a 501(c)3 dedicated to create a hub for research, statistics, and patient data on all autoimmune diseases.

ARI operates a national database for patients who suffer from any autoimmune disease. Its mission is to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.

Mr. Abend earned an BA at Middlebury College, an MBA at Columbia University, and has studied Biomedical Informatics at Stanford University.

Current position (3)

Executive Director

Autoimmune Registry Inc

Managing Director

Prognosis Data Corp

Managing Director

Recombinant Data Corp

Degrees (3)
Political Science
Middlebury College
1973 to 1977
Management
Columbia University
1980 to 1982
Biomedical Informatics
Stanford University
2011 to 2013
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Expertise (12)

Health & Well-being
Science
AutoImmune Disease lupus Rheumatology Empowering Patients Patient Engagement Clinical Research Data Privacy Electronic Health Records i2b2 patient registries
Recommendations
Why choose me? 

I think autoimmune diseases have a common cause and advocate to improve diagnosis and treatment

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