Marc Coronel

Most patient advocates tell a compelling story. I bring something different: a documented methodology with measurable outcomes, a verified legislative track record, and 13+ years of institutional relationships built at the intersection of rare disease, pharmaceutical strategy, and government policy. Here is what makes me different from every other speaker in this space: I have lived the system I now help organizations improve. As a kidney transplant recipient and FSGS patient, I navigated dialysis, rare disease treatment, the transplant waiting list, and the full complexity of the American healthcare system firsthand. That experience is not my talking point — it is my credential. I generated 33 living kidney donor inquiries through a proprietary digital storytelling methodology — proof that when patient voices are strategically amplified, they produce measurable, real-world results. That same system now drives the frameworks I build for organizations. My policy work is government-documented. I was named twice on the California State Assembly floor by two separate Assembly Members during active ACR 132 Rare Disease Day proceedings — officially recorded in the California legislative record via CalMatters Digital Democracy. I led the campaign that resulted in the City of Los Angeles and California State Senate (SCR 87) officially designating FSGS Awareness Day. I am one of the few patient advocates published in a peer-reviewed nephrology journal — the Clinical Journal of the American Society of Nephrology (CJASN), August 2025. I have been invited to keynote at TEDx, UCLA Health Medical Grand Rounds, and the California Rare Disease Caucus at the invitation of California Life Sciences — before State Senators and Assembly Members. I do not just inspire audiences. I give them a system, a framework, and a reason to act — and I have the outcomes to prove it works.