Robin Roberts is a patient advocate and leader who partners with health system leaders, physicians, and companies to provide valuable and actionable patient experience, care coordination, and rare disease insights. After caring for her youngest child for nearly 3 years with a rare disease, Robin knows what truly is needed to drive change, facilitate better care delivery and how to aid the real life challenges that happen when a rare disease happens—and it’s not done with just a patient or caregiver view. It’s how she connects with the heart-beating people within healthcare and is able to use both her personal experience and professional expertise to intersect with the healthcare professionals to overcome barriers and improve patient experience.
Robin’s son story has been featured in numerous media outlets including CNN, NBC Nightly News, ABC News, Fox and the Washington Post. As part of her passion for rare disease advocacy, Robin is a patient and parent member of the CDC Acute Flaccid Myelitis (AFM) task force. Her own articles and podcast featuring her experience can be found online as part of her professional podcast HIT Like a Girl Podcast. In addition to her extensive patient and advocacy experience, Robin is an experienced health IT strategist with expertise in health policy.
Robin holds a BS in Kinesiology from Arizona State University.
@rrobertsehealth
@HITlikeagirlpod
